Rare Ovarian Cancer Incorporated
Rare Ovarian Cancer (ROC) Incorporated is a registered charity created to raise awareness for Ovarian Cancer & to raise much needed funds for research. Ovarian Cancer isn’t just an old person’s disease.
ROC Inc. Research Funding Appeal
Help us reach our goal to further research into JGCT
Thanks to the Illawarra community, business support and a lot of hard work by the ROC Inc. board and fundraising committee, we have able to create research which is now the world’s largest for JGCT- Juvenile Granulosa Cell Tumour.
The goal of the research is to find the mutated gene through genomics for treatment options and to find a cure!
The research includes Australia's youngest case diagnosed at 11months old to Australia’s oldest diagnosed at 52 years old. It also includes a local child diagnosed at 16 years old.
Recently but sadly it also includes the world’s youngest case diagnosed at just four months old.
With our initial donations and fundraising money, we have been able to connect with Dr Simon Chu from the Hudson Institute of Medical Research in Melbourne. Dr Chu is a world leader in his field and specialises in Granulosa Cell Tumours.
No previous research into this disease means no answers to move forward for treatments or clinical trials. Granulosa cell cancers have a recurrent nature that is they come back over a long length time and requires a lifetime of monitoring.
That is why this research is so vital.
Currently the research covers 5 to 6 participants.
We have 24 participants registered with ROC Inc. making it the world’slargest research for JGCT and the numbers continue to grow.
Our next goal is to raise $25,000 to be able to pay for another 3 to 4 participants in the research.
Please help by Donating or attending our Gala Dinner
Saturday 7th September 2019 at Warilla Bowls and Recreation Club
ROC Inc. Research Funding Goal
Thank You Wall
Thank you to the following donors for their contribution!
Thank You to Our Supporters
Seafood Brothers Figtree
LAKEVIEW Hotel Motel
Oak Flats Cellars
Bendigo Community Bank
Foodworks Oak Flats
Our Latest Initiatives
3 days ago
Congratulations Tash Hope Ronnie gave you a big hug and kiss from me. Sorry I couldn’t get to the ceremony, hope to be out of hospital later today. See you soon. Enjoy your big day. Love Barb.xxxxxx🍾🍾🍾🍾🍾🍷🍷🍷
Well deserved Tash all your hard work is paying off. Go girl.😘💜💜💙👏👏
Congratulations and thank you for your ongoing advocacy, from Team OCA 💙
Woohoo Tash very well deserved CONGRATULATIONS!!!
Congratulations Tash xx
Congratulations! This is so well deserved! 👏
Congratulations Tash could not have chosen any one better xxxxxxxx
Congratulations Tash, we are all so so proud of you xxx
Congratulations Tash 👏
Wooooo Hoooooo...You Go Beautiful... SUPER PROUD OF YOU & Mikki...Saw You Up On Stage and What an Absolute Inspiration to So Many...ROC On..Love Ya..🇦🇺🇦🇺❤️
Congratulations Tash 👏
Wow well done
Congratulations Tash and Roc Inc.
Congratulations Tasha Armour!! Well deserved.
So proud of you Tasha Armour xoxo
Congratulations Tash, so deserving for all your efforts and commitment . X💕
Congratulations Tasha, you deserve it xx
OMG congratulations Tash so well deserved. Enjoy your celebrations!
Amazing work & well deserved - congrats Tash 🥳🥰
Oh so deserving Tash this is the best news
Woohoo well done lovely. I knew you’d win. Congratulations again and very well deserved Tasha Armour 😘❤️
Woohoooooo go tasha that's awesome. We are all very proud of you 😘💞👍
And You will keep winning girl !!! congrats
Congratulations Tash. Well deserved 💜
Well done again ♥️👍
ROC Incorporated is feeling hopeful at Rare Ovarian Cancer roc Inc.
2 weeks ago
This will be one of the most important posts ever for GCT and research, please read and share it to make an impact!
Juvenile Granulosa Cell Tumour jGCT an ovarian cancer that has NEVER EVER …. I repeat NEVER EVER received funding from the Australia Government for research.
We don’t even know the most basic information. Each cancer to be able to treat it needs to know the mutated gene, a starting point.
We are hoping that will all change as Rare Ovarian Cancer Incorporate – ROC Inc is working with the amazing and world leading Granulosa Cell Tumour -GCT experts, Dr Simon Chu and Professor Peter Fullers and their team at the Hudson Institute of Medical Research in Melbourne; as they applying for a rarely seen grant that allows applications for fundamental research for Ovarian cancer from the Medical Research Future Funds (MRFF).
Another meeting today with Stephen Jones. I would like to thank Stephen, Jarrod and the team for their support, ongoing phone calls, follow ups and meetings in helping us get this message to the government and the Australian Health Minister Hon. Greg Hunt.
The research grant that the Hudson is applying for is covering all Granulosa Cell Tumours, GCT accounts for 10% of all ovarian cancer, it has two sub types adult (aGCT) and juvenile (jGCT) and is different from the more common ovarian cancers that form on the surface of the ovary. GCT forms inside the ovary and the biology is very different to the more common forms. Clinical trials and medications that the government does fund currently is only for the more common types of ovarian cancer.
We need your support and we need a voice to make sure our message is heard.
My daughter was diagnosed at 16 years old with this horrible cancer that is recurrent and requires a lifetime of monitoring and no real treatment options because there has been no research.
I refuse and I won’t take that there has been no research, change is needed. Funding fairness is needed. We need fundamental research, that will lead to diagnostic tools and treatment options and my biggest wish of all a cure!
jGCT research will be the world’s first and largest systematic research, the participants in Australia the youngest diagnosed at 11 months old to the oldest diagnosed at 52 years old. In the world our youngest diagnosed at 4 months old the eldest diagnosed at 53 years. This horrible disease affects females of all ages from babies to older women. This is one part of the research they are applying for in the grant.
Please shout out with us to create change for the future for research for GCT.
Our government needs to know how important this research is and to listen.
Share the shit out of this and let’s make an impact on ovarian cancer research!
#RockforROC #ROCInc #ovariancancer #ovariancancerawareness #researchiskey #ovariancancer #jGCT #GCTresearch #cure #research #cancer #help #doingitformygirl #fckcancer #pleaseshare #fundfairness ... See MoreSee Less
Oh my goodness over 14,000 people have seen this post!!! 💙💛💙 Thank you to everyone that is helping to make this happen x
Wow the post reach over 19,500 and almost 250 shares!!! That is amazing 💙💛💙 lets keep it going x thank you Tasha Armour
Little or no research in Us. Can’t really get. Anyone interested in This research. Let’s hope Australia will Help us.
Please share this around. No money has been granted from the Government. I know this story personally and have helped whenever I can to make awareness. Please share around so every women worldwide knows how important this message is.
Shared in the USA!
This is great news!
Shared in the US!
Shared in USA.
Liz Howell, it's about time we got onto this....so many suffer and it's not universally known about. xx
Wendy George Kym George pleased you see so much research being done in Australia, thank you Liz x
Shared NSW 2529 🙌🇦🇺🇦🇺🤞😁
ROC Incorporated is at Channel 10.
2 weeks ago
Yesterday Tasha & Melanie had the opportunity to be interviewed for ovarian cancer awareness, to be shown on 10daily.
The beautiful Ovarian cancer Awareness Wings were also set up for Channel 10 staff to have their photo taken and share awareness for Ovarian cancer and its symptoms.
Huge thank you to Channel 10, Alison and her team and a very special thank you to @Hugh Riminton for tweeting a picture of him and the Wings 😍
Watch this space as change is happening for ovarian cancer awareness and research! 💙💛💙
#RockforROC #ROCInc #ovariancancer #ovariancancerawareness #researchiskey #jGCT #GCTresearch #OCAW #hughriminton #channel10 #10daily #shhhhhhh #cancer #ovarian ... See MoreSee Less
Awesome... Love your work ladies!
Great work girls
Fantastic work ladies Congratulations!!💞
💜💜💜💜Congratulations Tash & Co ...
Yippeeeeee excellent as always xxx
This is so fabulous. Thanks for flying the teal flag
Loving your great work girls 💖